Newsletter – Aussie MITO Mates
To recieve information directly targeted for parents and children who find themself wanting to know more about Mitochonrial disorders, treatments and equipment that can improve your quality of life.
This is a Newsletter written by parents of a 3 year old boy suffering a Mitochondrial disorder for parents of other children who also have Mitochondrial or genetic disorders.
The content will be focused on the questions parents ask us and also the articals that are submitted to this website for posting onto the blog.
All articals will be be displayed in the resources section of this website.
This newsletter will only released four times a year at this time. We intend that the newsletter only has the highest quality information targeted to benifit families.
The same information that helps our son Jack and information that other parents have found to be invaluable improving the quality of life for their children.
We also maintain a daily Blog that will contain more regular press releases regarding advances in Mitochondrial research and treatments and also information that we believe you want to know ASAP.
Consider also subscibing to the Mitochondrial disorder BLOG just have a look at the box on the left of the page marker with RSS, there is also a explaination on HOW TO DO IT
Visit our feedback link to help us improve this site, your advice will help me to provide a better resource, I’m not a professional web designer, just a dad trying to make a difference and give my son a chance to climb tall mountains and see the sun rise where other fear to tread.
Lets get the word out there and CURE THIS DESEASE.
Regards Trevor
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